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Parent Project UK (PPUK) was set up in 2001 by a group of parents who wanted to raise awareness, funds and campaign for further research into Duchenne Muscular Dystrophy. DMD is a devastating disease, a severe muscle wasting condition affecting almost exclusively boys. A Diagnosis is Usually made by 5 years. Families receive the life shattering news that their son will be confined to a wheelchair by 12 years, their sons muscles will continue to waste away eventually affecting their respiratory system and heart. They are told they will only see their son live into his late teens, early twenties. Imagine being told your child will die before you? At present there is no cure.
PPUK has been at the forefront of campaigning for further research and has funded a number of research projects. Medical research is moving at an incredible pace and there is now hope that there will be an effective treatment. Clinical trials are taking place that if successful will provide these young boys and their families with a real hope for a future and a long and more active life. But more funds will be needed to complete research, trials and provide the treatment. We are in a Race Against time to save our boys lives. Please help give these boys a lifetime by taking up your challenge of a lifetime! |
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